Timothy and Daddy had a bit of a rough night. Timothy slept for short intervals and had a good amount of pain. As of now, the bleeding from the trach is slowing down, they are weaning him off of supplemental oxygen and narcotics, and giving Tylenol and Ketoralac (a pain reliever/anti-inflammatory). Our usual Big Eater tried a bit of ice cream a couple of times but still isn't quite ready to swallow (hence a LOT of drooling). His lymphatic malformation is also swollen a good amount from the surgery trauma, but thanks to the g-tube, we have been able to decline more steroids. Timothy is trying to sleep on and off now after a few hours of DVDs. He wakes up pretty unhappy but eventually seems to calm once the drugs kick in.
Dr. Perkins saw him this morning and says he is doing well considering everything and, if we want, we can take him to Ronald McDonald house when we all feel ready. We will see how he does over the course of today and decide if he should stay another night. Our plane leaves tomorrow evening, but we can always change the flight if necessary.
Isaiah saw his little brother last night and was a little scared, I think. It was a good chance for him and me to talk (on a four-year-old level) about Timothy's pain and what he has to go through and why. I was touched when he told me he missed his brother and it wasn't much fun in the playroom without him. Of course, that might have just been because Isaiah didn't have anyone to boss around or listen to his nonstop gabbing! :) Our "deep" conversation ended with Isaiah talking about all the Doc Hudsons in the play room, and if he could have his lollipop. Sometimes it's good to get the perspective of a four-year old to lighten things up in all the seriousness.
Being back in the hospital is a good reminder of all the physical and emotional suffering in the world. I don't know why God permits our little boy to suffer, or the other children and families here (many of which are in much more difficult circumstances than we). I do know that I am ever more convinced that this world must not be our home. We long for something better, and difficulty makes it ever more clear. God created us for Heaven and that is where we belong. Yesterday I read from Psalm 30:5, "Weeping may endure for a night, but joy comes in the morning." Try as we might, we will never escape this world's brokenness. Now we weep, but when this night is ended, for eternity we will worship in perfect union with our Maker. Praise God for the hope He gives.
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