Sunday, December 26, 2010

God's Servant

Philippians 2:5, 7: "Your attitude should be the same as that of Christ Jesus, who... made himself nothing, taking the very nature of a servant."

Tomorrow marks the one-year anniversary of Timothy's tracheostomy. Back when everything was new, I used tell myself that, by a year's time, I would be adjusted and no longer living in crisis. To some extent, this is true. But does it mean I don't feel a tug on my heart every time I see a healthy newborn? No. Does it mean I can hear another infant laugh or coo while my son remains silent, and not long to hear his voice? No. Does it mean I can watch a baby nurse while my son takes milk through a tube, and not cry later? No. Does it mean that everything is fine now? As much as I try to convince myself that it is - it is not.


It has been a year of stages - denial, panic, depression, acceptance, endurance. The chronic, heavy, sick feeling of the early hospital days has been replaced with a steady yoke of labor, busyness, and, often, fatigue.


During Timothy's recovery in the Pediatric Intensive Care Unit, the comment was made to me, "What a calling God has given you." Never had I expected God's call on my life to involve caring for a baby with medical needs. I had trained as a classical musician and was sure that God's "calling" would be something much more exciting, interesting, fitted to my passions and pleasures, and aligned with my talents. I had no interest in medicine, no natural ability, and nothing to draw me to it other than the necessity to preserve my son's life. But why did I never expect that God might call me, His child, to a task that only He could accomplish (through me)?


It would be so easy for me to dwell on the things I have lost: my freedom, rest, free time, social life, normalcy (whatever that is). There is no way to explain the helpless feelings, the day-to-day toil, the frantic scrambling to keep up, the loneliness that inevitably results from meeting Timothy's needs around the clock. I have gotten used to the stares, questions, and uncomfortable silences in public, but it is the private times, the times that no one can share or understand, that are the hardest.


So what keeps me going? Right after Timothy was born, a friend wrote and gave to us an imaginary dialogue between Timothy and God. "Is it going to be OK God?" Timothy asks. "Well Timothy, right now you're a little young to understand, so let's just say that I've picked out someone real special to take care of you," He replies. God chose us to care for this child. Nothing else matters more than God's will. "Thy will be done, on earth as it is in heaven," we pray. Do we really mean it? When God's will is this clear, will we accept it and bear it with thankfulness, endurance, and joy? "In everything give thanks, for this is God's will for you in Christ Jesus." I can be honest about the hard parts of caring for my son, but in the end I must die to my own selfish desires and live for Him whom I call Lord. I must fix my eyes on Jesus, who for the joy set before Him endured the cross. I can say nothing in comparison to His suffering.


And if Timothy could speak, what would he say? I believe he would thank us for putting him first, for not giving up on him. I believe he would encourage us to persevere, to trust and honor God, for in the end there will be a reward. So this is what we do. And I pray that someday Timothy, too, will praise the God who gave his parents the strength to do it.

Friday, October 15, 2010

Hold Fast to Jesus


Luke 2:35, "...and a sword will pierce even your own soul - to the end that thoughts from many hearts may be revealed."


Nothing rends a parent's heart more than to watch his child suffer. While our own trials may tempt us to doubt God, being a forced bystander to the inexorable affliction of a precious little one dares us to turn our backs on Him completely.

Some time ago I heard a woman speak of being imprisoned in a Romanian labor camp for her belief in Jesus. While there, she was forced to watch as her son was summoned and then ruthlessly beaten before her eyes. What do you think this mother said to her son at such a moment? "Hold fast to Jesus!" was her exhortation. What could cause a parent to utter such words, when that very same Jesus did nothing to stop the injustice? "Curse God and die," said Job's wife. Isn't this the logical reaction?

When Timothy is at his worst the Enemy asks if I, too, will curse God. When spiraling down in the face of his wager, the solid foundation on which I always land is the truth of Jesus' death and resurrection. If true, then I can believe all that He said: that no suffering (including Timothy's) will be wasted, that heaven awaits with joys unspeakable, that this life is but a breath compared to eternity to come; that I have been saved from God's just punishment of hell. If false, then I am in the company of Paul: "If we have hoped in Christ in this life only, we are of all men most to be pitied" 1 Corinthians 15:19.

So, why do I choose the path of faith? Not because God also had to watch His own son suffer; not because I have nowhere else to turn; not because God has brought beautiful, abundant fruit out of the ugliest and most sorrowful times of my own life. No, I continue to follow God because I believe He is true.

So herein is the test: do you believe Christ is God? History says He rose from the dead to prove it; do you believe it? If so, you must trust Him even when it seems unreasonable, even wrong. Yes, it is a gamble. I choose to place my chips on eternity, for the benefits of being right about Christ, as well as the risks of being wrong, are both far too great to ignore. And, when Timothy is old enough to understand, I, like the Romanian prisoner, will tell Timothy to hold fast to Jesus.

Where will you place your bet?

Sunday, October 3, 2010

God's Gift


Psalm 127:3, "Behold, children are a gift of the Lord, The fruit of the womb is a reward."

Last night Timothy took his first real steps. It made me think of the past year and how far he has come. Then I realized that not only he, but all of us, are taking our first steps - wobbly, tentative, unsure, but full of earnestness and expectation - on this path God has chosen for us.

I remember the week we realized Timothy needed a g-tube. I was sitting helplessly in his room, holding him on my lap as he silently, furiously wailed. It was a culmination of several days - a bottle in my hand, trying again and again to feed a ravenous baby who refused to eat. Exhausted, broken, empty, I wept and cried out to God, thinking this must be what hell is like.

Since that moment the Lord has brought us from the valley of the shadow of death back to joy. Through those first steps last night, Timothy has symbolically conquered all the past year has brought him. Nothing can describe the feeling of watching that than pure, true, unadulterated delight.

Later that night I read about 17 other children who also had Timothy's same defect of lymphatic malformation. Unlike Timothy, these little ones received their diagnosis in utero. All 17 mothers chose to end their children's lives before birth. My joy turned to sorrow as I realized that they would never be given a chance to take their first steps, to overcome, to honor God and bring their parents joy.

When everything was new, I only saw Timothy's special needs; now that he is more familiar, I just see him. Finally, I understand why God says children are a blessing. Yes, they are a responsibility and sometimes even a burden. But through the gift of parenthood, God reveals a taste of what He feels for us as His own children. What a wonderful God He is to share this most blessed stewardship of raising His precious little ones! "Oh how deep are the riches of the wisdom and knowledge of God!" Romans 11:33.

Friday, September 17, 2010

Delight

Psalm 40:8, "I delight to do Your will, Oh God..."

The other day someone asked me what happened with my music, and I found myself responding, "Sometimes God's plans are much less glamorous than our own but much more effective in making us like Christ." Often I am tempted to consider what my life "could have been" and must cast off bitterness because my "dreams" have been set aside and replaced with such a tedious and mundane calling (at least as far as the world sees).

They say when you have a special needs child you go through a grieving process for what could have been. They say the end of this process is acceptance. On the contrary, the end of this process for the Christian should be delight. God has revealed through circumstances and His word that His perfect will and plan for my life is to care for Timothy, Isaiah, and my husband (Titus 2:5). If I fail to delight in God's will, then I forfeit the joyful contentedness that comes only from the Lord Himself. Psalm 73:26, "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Would I have more joy making music "for the Lord" than suctioning trachs and giving tube feeds? If I cannot find joy in whatever circumstances I am, I have not found my contentedness in Christ. Philippians 4:11,13, "I have learned to be content in whatever circumstances I am... I can do all things through Christ who strengthens me."

God is using Timothy to teach me to find my contentedness in Him and Him alone. More and more I see that I am Christ's servant, that my life is not my own. I am His instrument to bring Him glory. This means that, not only must I place my hope in heaven, I must also live each and every present moment with thankfulness and gratefulness. For our family, this has meant running a long, grueling race which tests us in our love, not only to bear all things, believe all things, hope all things, but especially to endure all things (1 Corinthians 13:7).

Jesus promised that whoever wants to be great must be the servant of all. Christ did not exempt Himself from humble, thankless service. His most important work on earth was shameful and agonizing. Am I willing to walk in the footsteps of He whom I call Lord and Master, with joy and delight? What glory this would bring Him, if others could see my joyful countenance in the midst of struggle, the only explanation of which would be the power of Christ Himself. God, please use Timothy to help me to honor you in this way.

Sunday, September 5, 2010

Day in the Life

This is a sample of what it has been like to care for Timothy during his first year. It's not very fascinating, but I want Timothy to know how much we loved him and gave for him, and what our lives were like in the early days.

May 18, 2010

6:00 AM - Wake up, pump breast milk

6:30 - Shower, get ready while Shannon feeds Timothy

7:00 - Wake up Isaiah, help him make his bed, get him dressed, and treat his imaginary owie

7:15 - Prepare breakfast, eat, have Bible lessons, start washing dishes, show Isaiah how to seal a ziploc bag, give Shannon a kiss goodbye

8:05 - Change Timothy's poopy diaper

8:15 - Finish washing dishes, suction Timothy, help Isaiah stack his blocks

8:30 - Put Timothy down for his nap, suction him, and pick up the nursery

8:35 - Pump, make phone calls while Isaiah has sit time/quiet time (practice for doctor's office visits), prepare Timothy's bottles, wash dishes, clean poop off of Timothy's shorts

9:00 - Preschool for Isaiah - numbers

9:45 - Prepare dinner food, show Isaiah how to peel garlic

10:15 - Timothy up - suction, feed him peas and rice cereal, suction again; clean Isaiah's poopy diaper, give Timothy milk, spill milk all over my pants, clean pants, calm fussy baby, talk on phone to occupational therapist in Seattle, try to keep Isaiah quiet and out of trouble while on the phone

10:55 - Pump, two more phone calls

11:00 - Timothy's physical therapy visit

11:30 - Feed Isaiah lunch, put Timothy down for nap, have Isaiah help wash dishes

12:00 PM - Eat lunch, Mommy and Isaiah time, read Elmo book, wash my lunch dishes

12:15 - Visit from Heather

12:30 - Naps - Isaiah, Timothy, and Mommy

1:05 - Timothy up, diaper change

1:15 - Work on government paperwork, schedule doctor appointments

1:45 - Calm fussy baby

2:10 - Isaiah up

2:15 - Pump, read animal book with boys, prepare food for dinner

2:45 - Feed Timothy

3:10 - Cooking

3:20 - Mommy, Isaiah, and Timothy time

3:40 - Cooking

4:00 - Put Timothy down for nap, Isaiah time

4:05 - Cook with Isaiah

4:35 - Timothy up


4:40 - Cooking

4:45 - Calm fussy baby

5:00 - Cooking

5:10 - Pump

5:25 - Supervise toy cleanup time

5:35 - Get trach change ready

5:45 - Go through mail

5:55 - Set table, put away dishes, feed cat, finish getting dinner ready

6:00 - Shannon home

6:15 - Dinner

6:45 - Trach change

7:00 - Gym

8:30 - Watch TV, dessert

9:00 - Pump, make bottles

9:30 - Get ready for bed

10:00 - Feed Timothy

10:30 - Bed




Friday, July 2, 2010

Slaves of God




Romans 6:22, "...and having become slaves of God..."

God is using Timothy to teach us what it means to be slaves of Christ. We no longer live for ourselves, but are completely and thoroughly devoted to this stewardship with which He has entrusted us. I Corinthians says our lives are not our own, we were bought with a price - the cost of Christ's blood. Now that it is time to take up our cross as we follow Him, are we willing to do it thankfully and joyfully? His Word says that joy comes not from living for ourselves, but from loving others.

Right before Timothy was born, I was asking God what it meant to rely on His strength and not my own. Now, I am in a place where it is impossible not to do so. Each day I am faced with my own weakness and given the opportunity to turn to God and ask for His power to be made perfect. He is faithful and always answers.

We are also beginning to understand that there are two sides to humility, both of which are reflected in the free gift of eternal life given by God to helpless sinners: one side which comes from giving, and the other side which comes from receiving, what cannot be repaid. The enemy constantly tries to fill my heart with indebtedness to those who have selflessly given to our family in our time of need, for we have not the means to repay. How could we? Every moment of every day is filled with Timothy's care. And Timothy himself, at least now, does not thank or laud us or give back to us in return. We serve Timothy as slaves of the Lord, trusting by faith that He sees our love for Timothy, and that He will reward us in heaven, as He will also reward those who have loved us. And is this not how God is most glorified?

There is a picture of Timothy in the NICU in which my hands are firmly and yet gently placed on his little body, letting him know that he is not alone in his suffering. As I look at that picture, I see that God is using my hands to comfort him, that through my hands He is being Timothy's strong, loving protector. How humbled, and honored, I am to be God's vessel of compassion to my son. This is what it means to be Christ's slave: to be used of God, by His strength, to love others. This is what it means to experience true joy. This is what it means to know the love of God.

Thank you, Lord, for giving us Timothy, to teach us to honor You.

Sunday, May 30, 2010

Christmas 2009






Psalm 118:17, "I will not die, but live, And tell of the works of the LORD."

Christmas Eve the night before had been a wonderful time of memory-making. We had gone to the Harned's and watched Isaiah, Dell, and Logan sing Jingle Bells while loved ones passed Timothy around. He slept contentedly in Matthew Stock's strong, secure arms for half the night!

I don't remember much about Christmas morning... I know we opened presents and were preparing to drive to San Diego to have dinner with my parents and grandparents. On a whim I decided to change Timothy's shirt to a "My First Christmas" tee he had gotten from Mary Ann and Larry from across the street. When I undressed him, I noticed with each breath, his entire chest caving in. "He's okay... right?...no, that just doesn't look right," I thought. I put the shirt on, then lifted it up to look again. No, it didn't look right.

I called the Kaiser nurse, who told me to call 911. I was skeptical. "Won't they just drive him to the ER?" I asked. "Yes," she said, so I thought, no big deal, he's not dying, we can just drive him ourselves. Shannon was faster at getting ready, so I figured he could get a head start by driving Timothy there first. Then we wouldn't have to wait too long. We weren't in a huge hurry.

Shannon got ready and took Timothy to the Kaiser Anaheim ER while I packed up the car for my parents' house. I assumed we would be at the hospital for a few hours, they would discharge Timothy, and we would drive down after that. I dressed up Isaiah in the special Christmas outfit Dellene had gotten him, and he looked adorable. I snapped a couple of pictures of him then headed off to the hospital.

When I walked in, I saw the ER pediatrician, Dr. Murtari, pacing anxiously while a nurse kneeling down next to Timothy's bed tried again and again to get an IV in his foot. There was blood on the sheet where she had failed to insert it in the other foot. Dr. Murtari firmly and urgently told the nurse that she needed to get the IV in. He explained to me that they were going to inject Timothy with a steroid to reduce the swelling, which he suspected was compromising his airway. "Is he going to be okay?" I asked. "He needs to respond to the steroid," was his answer. Timothy cried furiously with each prick. Nanette, one of the NICU nurses who had cared for Timothy after his surgery, heard him and stopped by to help. At long last the IV was in. "I prayed," said the nurse who did the job. "When your husband told me about the hygroma, I suspected that was the problem," said Dr. Murtari. We are going to do a CT scan on him shortly to see if this is the case." "How long would he have made it if we hadn't brought him in?" I asked. "He probably wouldn't have gone much longer than a couple more hours like that," he replied. Slowly I started to understand that Timothy's condition was much more serious than I had realized.

At about 2:30 I started to make phone calls. I let my parents know that we probably weren't going to make it. My mother had made Christmas dinner for all of us, and my grandparents, and my grandmother had broken her arm on Christmas Eve and also wasn't coming. Christmas dinner hot and ready for an empty house! The Harned's offered to come pick up Isaiah, which they did. By God's grace, Timothy's breathing eased up after the steroid was injected and he slept peacefully for several hours, despite us not being allowed to feed him.

His CT scan showed that, indeed, the cyst was growing back and blocking his airway. The plan was to intubate him and transport him to Kaiser Sunset, where we thought he would be receiving another resection surgery. After several hours of waiting, they wheeled me, with Timothy on my lap, to the OR for the breathing tube to be placed. Timothy woke up and started to cry as he saw the lights passing by over his little head. I will never forget his cry, or the look of fear on his face as he sucked on his little blue fish pacifier. It was as if he remembered being wheeleed in this way before - did he know from his first surgery? Whatever the case, even at only 6 weeks old, he knew something was not right.

The medical transport team from Children's Hospital Los Angeles, and the anesthesiologists and ENTs on staff at Kaiser Anaheim, let me kiss him goodbye since we were not allowed in the OR with him. A look of fear crossed his face as if to say, "Why aren't you coming with me?" Then the doors shut behind him and Shannon and I were alone. He was put under general anesthesia for the breathing tube and did not wake up again until after the New Year.

Shannon and I waited in the X-ray lobby for them to tell us when to make the trip up to Hollywood. While we waited, we saw Dr. Lau and his wife delivering Christmas cookies to friends. We talked, but I'm not sure what we really said... I think Dr. Lau didn't know what to say...

We ate Christmas dinner in the hospital's basement cafeteria. Shannon said he was relieved, that he had been worried about Timothy's breathing for some time. I had been in denial, until earlier that week when Shannon had said he thought it might be growing back. "I don't think we're out of the woods yet," he had said. He was right.

At long last, the ambulance boarded Timothy after a chest X-ray to verify the correct placement of the breathing tube. We tried to follow the ambulance for some time, but lost it after parking one of our cars at the Holiday Inn in La Mirada. After a ton of traffic and a detour around Los Feliz due to some kind of event at Dodger Stadium, we finally completed the long drive up to Kaiser Sunset. This would be the first of many in the following weeks...

It was a cold night and I hadn't dressed for a long walk outside on Sunset Boulevard. We navigated the maze of hallways, elevators, and corridors with some help from a security officer and finally found the PICU on the 5th floor. There was Timothy, drugged to sleep with a tube in his mouth. I felt the same numbness I had on the day of his birth. It was close to midnight and we were told to come back in the morning to meet with the surgeon, who would go over Timothy's options.

And that was our Christmas, 2009. Someday I plan to show this account to Timothy so that he can understand how God intervened that day to save his life. Christmas will from now on be a day of remembering God's hand in protecting our son. Had God not intervened, Timothy might have stopped breathing on the way to San Diego in his rear-facing car seat, and we would have just thought he was asleep. God was gracious to us in sparing him when we failed to call 911 as directed by the nurse. God has a plan for Timothy, and He wants him here on this earth to bring glory to Him. I can't wait to see what He has in store for Timothy's life.

Sunday, May 23, 2010




Isaiah 44:5, "One will say, 'I belong to the LORD..."

November 7, 2009.

It started out like any normal day, if there is such a thing for a pregnant woman three days past her due date. I went to the pool, came home, showered, and started getting ready. Around 10am I noticed my vision start to blur, so I checked my doctor's notes, which said to call if this happened. I decided to wait 15 minutes to see if the blur went away. It did - and then the contractions started. I got out the timer: 3 1/2 minutes apart. After about half an hour, I called labor and delivery, and they said to come in. I called Shannon, who had just arrived at work, and asked him to come back home. Allison came to pick up Isaiah. "When you come back home, you'll have a little brother," I told him. Little did I know that Timothy wouldn't be coming home for another two weeks.

Shannon drove me to the hospital and walked me to the Labor and Delivery triage window. "Can I help you?" the nurse asked. "We're having a baby," Shannon replied. I remember thinking, how strange, why else would a 9-month pregnant lady be standing there with her husband? Anyway, once inside, they strapped me to a monitor. Just like my last labor, the contractions made me feel like I wanted the barf bowl, so I asked for it, but never actually used it. After about 10 minutes in triage the nurse checked me and I was already at 8cm. The rush began to get me to a delivery room. "You may not have time for an epidural," the nurse said. I panicked - labor with Isaiah had been horrible and I was scared. Then the song came into my head: "God is so good, God is so good, God is so good, He's so good to me." I kept it in my head during the whole labor.

Once in the delivery room, the nurse gave me two shots of fentanyl, which made me dingy but didn't do much for the pain. The anesthesiologist was brought in and did his job fast - thank God for the epidural. They stuck my arm several times and finally got the IV in. The nurse checked me again and told Shannon to RUN out to the car and get the camera. By around 3pm they were telling me to push.

"I can see his hair!" the resident said.
"Push!" said the nurse midwife.

In a just a few pushes he was out. I heard a weak cry, then...

"What's that?"
My husband looking white as a sheet.
"Did this show on the ultrasound?" "No."
"Take him to the NICU?" "Yes."
"Skin to skin okay?"

They laid Timothy on my stomach... and there was my baby, but... "What's wrong with his face?" I asked. At first they didn't say anything to me. "Maybe they can drain it," one of the nurses finally said. Then they whisked him off to the NICU. I had just delivered my son, and minutes later the room was strangely quiet.

After a little while the nurse sat me on the toilet - I had to pass the urine test before I could go to a postpartum room. "Can you sit there for a minute?" she asked. "Sure," I replied. Then, "Is it normal for me to feel nauseated?" "Are you going to faint?" Tunnel vision... then smelling salts, a cough, and wide awake. I don't know if it was from loss of blood or emotional shock...

Once upstairs, they told me they did not know what Timothy's tumor was, and that they would be doing a CT scan on him the next morning. How was I supposed to sleep that night? Shannon wheeled me down to the NICU where I got to hold Timothy for the first time. He looked like a monster. All I could think was, they must be able to just go in and remove it. Then he will be fine, right? I hadn't cried yet. I hadn't felt anything. I was numb.

The night shift nurse was named Winnie. Shannon asked if he could call her Winnie the Pooh, and she said that was fine. She was a sweet, funny, Taiwanese, Christian lady who told me that the mesh panties they give you in postpartum are from Victoria's Secret. I laughed... Then, Winnie prayed for our family, and I cried for the first time. "I just want to know what's wrong with the baby," I said. There were a lot of other things I wanted to know, but didn't have the mental resources to consider...

The next afternoon, they finally gave us a label: Cystic hygroma. Cystic what? We had to write it down. Thank God it wasn't malignant. Timothy was probably going to have a surgery before coming home. I kept thinking, everything will be okay after surgery, right? Then the visitors came: my parents, Shannon's mom, brother, and sister-in-law, the Harned's, Crizer's, people from our church. They didn't know what to say, but prayed for us and were there for us in our pain.

I was ready to be discharged from the hospital, and they brought us a fancy "Celebration Meal," which they give to all new moms. It felt like a bittersweet celebration. How could I celebrate without my baby? How could I enjoy a special meal when I would be going home without him? The food tasted like sawdust in my mouth. I wasn't very hungry.

So Shannon and I went home. I remember the moment I first sobbed. I saw a box of diapers that had been given to Timothy at his shower - and it had a picture of a beautiful, normal baby on it. Right next to the box was Timothy's empty crib. Timothy was not normal, and he wasn't home. He was alone in a NICU crib with strangers looking after him, and a painful, scary surgery in his near future. All I wanted to do was be with him, hold him, comfort him, tell him he was not alone, that everything was going to be okay...

Then God reminded me, "I AM with Timothy. I knew the whole time Timothy was in your womb that this day would come. I knew it before the foundation of the world. Suzanne," God said to me, "Timothy belongs to ME." "Yes, God," I replied. "Timothy belongs to You." God is so good, God is so good, God is so good...

I could write much, much more, but I will stop for now. Someday I want to tell Timothy from the very beginning how God has been at work in his life. This is how his life started, and this is the honest telling of the story, from his mother's heart.

Wednesday, May 19, 2010






Last weekend we looked at pictures from Timothy's birth and NICU stay. It is amazing how God's plan for Timothy has unfolded, how far he has come, and how God has already used him to change our hearts and bring glory to Himself. We chose his name, Timothy, because it meant "honoring God." We chose it before we knew anything about his lymphatic malformation and all that it would bring. We chose it because God chose it first.

Recently I have been asking myself: Do I truly want to grow in Christ more than I want to have a comfortable life? Hebrews 5:8 says that Christ learned obedience from what he suffered. Is it more important to me to learn obedience through this suffering God has allowed our family to endure? If it could all go away tomorrow, would I miss this opportunity God has given me to grow? James says to count it all joy whenever we face various trials, knowing that the testing of our faith produces endurance. Do I really want the things that are eternal, or do I prefer the comforts of this world? Am I willing to depend on others? Am I content with sacrificing my independence? Philippians says that Jesus became obedient to the point of death. Do I share the same level of commitment?

Sunday, May 16, 2010


Isaiah 30:21, "This is the way, walk in it..."

Caring for Timothy is an all-consuming occupation: body, mind, and spirit. Paul talked about himself being poured out as a drink offering on the Philippian church... our lives are being poured out into Timothy's with both suffering and joy. Self is lost in the constant, unrelenting needs of our son. Even with all of the help, prayers, and love extended to us over the last 6 months, there is a certain loneliness to raising a child with special needs that only the immediate family understands. There are no breaks, no time off, no moments when you can just rest - the needs are ever-present and a false move could mean your child's life. Daily we die to ourselves as we give all to our son in the service of God, who has entrusted him to us. We wonder how or why God considered us worthy of such a daunting responsibility. Daily I ask for His grace and help, and He always answers me in return, "My power is made perfect in weakness." If I do not allow myself to be weak, how can Christ's power work in me? "For when I am weak, then I am strong." Most definitely, God has given us the opportunity to show His strength, and this is the hope that keeps us going.